Breaking down barriers: Supporting autism care in Ghana

In Ghana, a number of children live with autism spectrum disorder (ASD), a neurodevelopmental condition that affects communication, social interaction and behaviour. 

Despite its prevalence, autism remains shrouded in misunderstanding and stigma, exacerbating the challenges faced by affected families. It is a health condition that has been misunderstood and, therefore, it is regarded by many as an evil spirit-induced disease.

In Ghana, traditional beliefs often link developmental disorders such as autism to spiritual or supernatural causes, leading to widespread stigma and misunderstanding. Families of children with autism face social isolation, with little understanding or support from their communities.

It is time to break down these barriers and ensure that individuals with autism receive the support and care they deserve. The condition presents in children from as early as one to two years and according to medical experts, early detection and diagnosis are vital, yet challenging, in Ghana.

The importance of early detection and intervention cannot be overstated. When identified before the age of three, symptoms and behaviours associated with autism can be significantly improved or even reversed.

However, in Ghana, limited resources and trained professionals hinder timely diagnosis and treatment.

This scarcity of expertise is compounded by traditional beliefs that often attribute developmental disorders to spiritual or supernatural causes, leading to widespread stigma and social isolation for families.

The journey of parents with autistic children is fraught with emotional turmoil, financial burdens and a lack of support. As they navigate the complexities of autism, they often face blame and accusations of witchcraft or curses from their communities.

This toxic environment forces many to seek unproven and ineffective solutions, delaying crucial interventions and exacerbating the condition. The July 26 edition of the Daily Graphic carried a story in which a neurodevelopmental paediatrician at the Greater Accra Regional Hospital, Dr Yvonne Nana Ama Brew, said: “Between birth and three years of age, 90 per cent of the brain is formed, making this period crucial for brain development and learning."

She said while autism could not be cured, early detection and intervention could lead to significant improvements and reversal of symptoms and behaviours associated with the disorder.

She mentioned symptoms that could be effectively managed or mitigated with early intervention to include communication skills, social skills, repetitive behaviours and sensory issues.

More importantly, health experts say early detection is a shared responsibility between parents, caregivers and teachers, with healthcare providers as key partners.

The Daily Graphic, therefore, commends Guaranty Trust Bank (Ghana) Ltd and its parent company, Guaranty Trust Holding Company Plc (GTCO), for instituting the annual Autism Workshop and Consultations.  

For three years running, autism detection and care awareness has been the bank’s biggest corporate social responsibility programme that is dedicated to providing support to people, especially children living with autism, their families and caregivers in our communities.

The Daily Graphic also joins health experts to call on stakeholders who deal with children, particularly below age three, to look out for the symptoms of ASD in children to facilitate early detection.

Also, we call on family members to support parents who have children with autism. To create a more inclusive and supportive environment, we must prioritise awareness creation and education.

By understanding autism and its effects, we can dispel harmful misconceptions and promote empathy and acceptance. Families and caregivers need access to accurate information, resources and support networks to help them cope with the challenges of autism.

Community-based initiatives such as respite care, support groups and awareness campaigns can play a crucial role in breaking down barriers and reducing stigma.

Moreover, policy reforms are necessary to ensure inclusive education and accessible specialist care for individuals with autism. Schools must be equipped to accommodate children with autism by providing tailored support and resources to facilitate their learning and development.

Access to specialist care, including occupational therapy, speech therapy and psychological services, is essential for individuals with autism to thrive.

The Daily Graphic believes supporting autism care in Ghana requires a multifaceted approach that addresses the medical, social and emotional needs of affected individuals and their families.

By working together to create a more inclusive and supportive environment, we can empower individuals with autism to reach their full potential and lead fulfilling lives. Let us join forces to break down barriers and build a brighter future for all.