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Spiritualism to realism: Journey towards autism

Autism has been a misunderstood and stigmatised condition in Ghana.

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However, a wave of change is sweeping across the country, bringing awareness, acceptance and much-needed support to those affected.

I would like to delve into Ghana’s evolving journey with autism, spotlighting the strides made and the challenges that persist. In Ghana, traditional beliefs often link developmental disorders such as autism to spiritual or supernatural causes, leading to widespread stigma and misunderstanding.

Families of children with autism face social isolation, with little understanding or support from their communities. The change began with the efforts of organisations like the Autism Awareness Care and Training (AACT) Centre in Accra and the Autism Society of Ghana.

These pioneers have been at the forefront of educating the public, advocating for the rights of individuals with autism and providing essential support services. Their work has been crucial in shifting perceptions and fostering a more inclusive society.

Early detection and diagnosis of autism are vital, yet challenging, in Ghana. Autism is usually diagnosed through behavioural observations, as no medical tests can definitively confirm the condition. The scarcity of trained professionals—paediatricians, psychologists and speech therapists—adds to the difficulty.

Early intervention

Despite these hurdles, awareness among healthcare professionals is growing. Training programmes are helping paediatricians and healthcare workers recognise early signs of autism and refer families to appropriate services. This shift is critical; as early intervention can significantly improve outcomes for children with autism.

Education remains a key battleground for children with autism in Ghana. The concept of inclusive education, which integrates children with disabilities into mainstream classrooms, is still in its early stages. Many schools lack the necessary resources, trained staff and infrastructure to support children with autism effectively.

Nonetheless, progress is being made. Some schools are adopting inclusive practices and providing specialised support. The AACT Centre, for instance, runs an inclusive education programme that helps children with autism thrive in mainstream schools. Advocacy groups are also working towards policy changes to make inclusive education the norm.

Support

Families are at the heart of supporting individuals with autism. In Ghana, parents often face the burden of care with limited resources and support. Empowering these families through education and support services is crucial.

Community support is equally essential. Initiatives promoting community acceptance and inclusion can significantly enhance the quality of life for individuals with autism.

Community-based programmes offering respite care, support groups and awareness campaigns play a vital role in breaking down barriers and reducing stigma.

While Ghana faces significant challenges in addressing autism, there are also vast opportunities for positive change. Increased collaboration between government agencies, non-governmental organisations and international partners can improve the availability and quality of autism services. Policy reforms prioritising the needs of individuals with autism, such as inclusive education and healthcare access, are essential.

Campaigns

Public awareness campaigns must continue to educate the broader population about autism, its characteristics and the importance of inclusion. Media campaigns, community outreach and public lectures are powerful tools for fostering a more informed and accepting society.

Ghana's journey with autism is a story of moving from the shadows to the spotlight. While much work remains, the progress made in raising awareness and providing support is commendable.

By focusing on early detection, enhancing educational opportunities and fostering community acceptance, Ghana can ensure that individuals with autism lead fulfilling and productive lives.

The collective efforts of families, communities and policymakers will pave the way for a more inclusive society, where every individual, regardless of their abilities, is valued and supported.

 The writer is a student of the University of Media, Arts and Communication (UNIMAC)-Institute of Journalism
Email: charlottewaklatsi20@gmail.com

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